Scotland becomes first in UK to test newborns for rare genetic condition

Spinal Muscular Atrophy (SMA) causes progressive muscle weakness and, without treatment, can limit life expectancy to just ...

Scotland becomes first part of UK to screen newborns for spinal muscular atrophy

Campaigners hope pilot will result in heel prick test for rare condition being approved across Britain ...

What is SMA? The rare genetic condition that Jesy Nelson’s twins have

What is SMA? The rare genetic condition that Jesy Nelson’s twin daughters have - Former Little Mix star revealed her twin ...
Opinion

EXCLUSIVE: Parents of tots with same condition as Jesy Nelson's twins send star five-word message

Paola and Rhys Davie's little girl Emma, and Urszula and Daniel Kaniewfka's son Bartosz, like Jesy’s twins, have Spinal Muscular Atrophy, which can cause muscle weakness ...
The Online Citizen Asia

Singapore parents raise S$2.4 million in 10 days to fund gene therapy for baby with SMA

A crowdfunding campaign for five-month-old Ginny, a Singaporean baby diagnosed with Spinal Muscular Atrophy (SMA) Type 1, ...
AOL

What Is SMA Type 1? Jesy Nelson’s Twins’ Diagnosis Explained

On Sunday, Jesy Nelson, a former member of beloved girl group Little Mix, shared the emotional news that her eight-month-old twin daughters, Ocean Jade and Story Monroe, had been diagnosed with Spinal ...
Hosted on MSN

'The most heartbreaking time of my life': Jesy Nelson opens up about twins' SMA type 1 diagnosis

Jesy Nelson is opening up about her twin daughters’ diagnosis of spinal muscular atrophy (SMA). The genetic condition is characterised by weakness and wasting in the skeletal muscles, which causes ...
MedPage Today

In Children with SMA Type 1, Powered Mobility may be a Winner

—A new qualitative participatory study explored how powered mobility (PM), in the form of modified ride-on cars, impacts children with spinal muscular atrophy type 1 (SMA1) and their families. Here ...